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rethinkingpink
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« on: January 24, 2008, 04:01:04 AM »

I wasn't sure what to put in the subject line, as you can see.  I'm having a hard time these days, again, w/ my daughter.  She's been diagnosed w/ so many things it's unreal, and depending on which Dr. we're talking to, each one only thinks a select few diagnoses apply.  It's hard to know which ones she really has when all the professionals disagree.  Her behaviour and outbursts are escalating out of control again and her psychiatrist and counselor mentioned the words "inpatient residential treatment facility" again this week after a very serious episode.  We've been through that before & I can't believe we're back to square 1 again.  Her inpatient treatment before went unfinished b/c insurance announced after 3 months that they weren't paying, so we had to halt treatment.  She hadn't even skimmed the surface of the deeper issues, she was still denying them, so no progress was made.  I'm still not wholly convinced that sending her away from family, away from that love, is really the best thing.

There are some extremely weighty issues in her past/present and some of it has affected other family members unjustly.  It has created some safety issues and providing the level of supervision required (line of sight, 24/7) is challenging at times.  We're just taking life day by day and I still hope she can be treated here locally, but effectively enough to make a difference, w/o her having to go away again.  I don't know what I'm asking for here or why I'm divulging such personal info online.  I guess it's easier when it appears to be just a screen.  We're having a really hard time keeping it all together at home.  It's all falling apart.  My sons are scared of her again, they run and hide during her ragings, which have been steadily getting worse for a long time.  I don't know what to do, I feel worn down.  If you pray, maybe tag my family onto your prayers?
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« on: January 24, 2008, 04:01:04 AM »

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Marquise
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« Reply #1 on: January 24, 2008, 06:41:59 AM »

This is a tough, tough situation.  My cousin was schizophrenic and terrorized her younger sibling.  It was a very bad situation.  The only advice I can give is to remember that every child in your family needs your love and try to find a support group of other parents.  That can really help.
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« Reply #2 on: January 24, 2008, 11:10:14 AM »

RTP......wow....I didn't realize you were having such hard times.....this has got to be an incredibly frustrating time for you.....

I will make extra time to send some positive thoughts and love your way...

I wish I had some wisdom that would help.......hang in there hun...we're here for ya! Love
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« Reply #3 on: January 24, 2008, 11:41:19 AM »

You've got it...lots of prayer coming your way!  I'm sorry your family is having such a rough time lately.  I'll be praying that you and your daughter's docs can find a solution that works for her and makes things easier for your boys, too.
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« Reply #4 on: January 24, 2008, 11:44:57 AM »

RTP, I am sorry you and your family are having such problems.  It would be so hard to make a decision.  As Moms we love each of our children and we want what is best for them.  I will pray that a clear diagnosis and treatment plan that is workable will be found and also that you and your family will find a way to handle what is going on.

Sending love and some peace your way! :hearts
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rethinkingpink
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« Reply #5 on: January 24, 2008, 06:38:53 PM »

Aw geez, you guys are making my eyes water.  Thanks so much, we really could use all the prayer we can get.  I'm a firm believer in that verse that says "where 2 or more gather together (does it say in prayer? or in agreement?) there I (God) am in the midst of them".  Boy I guess I should brush up on that,  :ooops: .  I'm really grateful for all your encouragement and support, thank you so much.  :grouphug:   Love  :ty:  Love
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True tolerance is loving someone despite actually disagreeing with them.  There is nothing to tolerate if you are not bothered.

Honesty and transparency are virtues to be treasured - don't hide your beliefs in the name of tolerance, be honest about where you stand, just do it with love. smiley
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« Reply #6 on: February 06, 2008, 09:06:47 AM »

We will be praying for you :hearts  And maybe you can find some support for you and your family from other families that are dealing with the same issues.  I'm not sure exactly what her diagnosis is or what the issues are exactly but I'm sure you are not alone and would take comfort in hearing what others have done.  Or just be able to vent to other parent's that have dealt with it and can truly understand your frustration.  Good luck to you guys
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« Reply #7 on: February 06, 2008, 09:28:37 AM »

I'll definitely have you and your family in my prayers!  :hugme:
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« Reply #8 on: February 06, 2008, 05:50:50 PM »

My heart is hurting for you and your family right now.  What an impossible situation.  I do hope that you can find a support group to talk to about things and that your Doctor's can come to agreement about the diagnosis and how to treat your daughter.

Positive energy coming your way along with prayers.
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« Reply #9 on: February 07, 2008, 08:59:00 PM »

RTP -

Have the doctors considered behavior meds?  My son is autistic & was getting extremely aggressive.  His pediatrician started him on risperdal (there are some risks involved & I realize some parents are totally against medicines) but we do not function without it !  When I lost 2nd job (insurance) I applied for a medical card (denied) but was sent to local comprehend / pathways / mental health clinic - they have a program in our state, where the drug co.'s will cut costs of payment & finally, DH got a job with insurance.  You may want to check to see if they have any treatment programs available (out-patient) that she could attend.  You and your family will be in our prayers!   :hugme:  I know, from our experience, that it is not an easy road.  Bless you all!
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rethinkingpink
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« Reply #10 on: February 08, 2008, 06:39:56 PM »

Hey guys,
Wow I didn't know ppl were still reading this old post of mine - I was falling apart when I posted it, I don't usually like to put such extremely personal stuff out in public, but when in a state like I was, I was just like ah what the hey, I really needed to spill.  Thanks for the prayers!

Tam, she came home from 3 months at a residential treatment facility on 2 biggies - Lithium and Wellbutrin.  Dr.'s locally added Seroquel and Triliptal (sp? on all of them, oops) into the mix to lower and eventually replace the 1st 2.  But Lithium helps w/ things that the latter 2 meds don't, so we'll have some more clues as to bi-polar or not once she's off it.  If things get way out of hand when the litium amount is reduced, that's a clue.  I wish they could just do MRI's of ppl's brains to find out what's really going on.  All the guessing gets so old.  Thanks for the info on the local mental health clinic - I'll search around to see if there's anything like that.  There is a state-run thing set up called Family Centered Services that will provide respite care and work w/ her a bit while she's in their care.  Some friends of mine use it w/ their handicapped child, but FCC doesn't return my calls.  I think I'll have to get a bit more detailed to explain the urgency in my voice-mail messages (ex., "she was in the ER last week and NEEDS HELP NOW!!).  Maybe getting really blunt w/ them like that will hurry the process. 

We don't have a residential mental health treatment facility here, those usually offer some type of half-day outpatient treatment options too.  They're building one to be done later this year, but right now it's just standing empty and unfinished.  (PMing Tam w/ more questions)...
Thanks guys! *grouphug*   Love

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True tolerance is loving someone despite actually disagreeing with them.  There is nothing to tolerate if you are not bothered.

Honesty and transparency are virtues to be treasured - don't hide your beliefs in the name of tolerance, be honest about where you stand, just do it with love. smiley
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« Reply #11 on: February 08, 2008, 08:55:07 PM »

RTP, thanks for the update!  I have been thinking of you and your family a lot lately and praying for some solution.  I have a brother who is a recovering alcoholic and drug abuser, but he is bipolar and manic/depressive, from years of abuse and the chemical imbalance. he is on Prozac and Lithium.  Lithium is pretty tricky to get the right dosage and it has some side effects that have to be monitored with regular blood tests.

I know that is not your situation, so I didn't mean to imply that your daughter has done anything to cause her problems.  It is so hard until they get the right combination of meds to help control the symptoms.  I do continue to pray for you and your family and that you would find some relief and some peace!  Love   :hearts
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« Reply #12 on: February 08, 2008, 09:59:29 PM »

RTP, how old is your daughter?

My ex husband was diagnosed with Bipolar Disorder in 1995 after over 6 months fight with our HMO we never did win with them, we had to change insurance companies. He takes Lithium, Depacote, Trazadone and Zoloft. He also takes Navane when he shows signs of being Psychotic.

I always found that they listen (because they have to) if you say they are threatening themselves or others!

My heart goes out to you all!!!!  :hearts
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rethinkingpink
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« Reply #13 on: February 09, 2008, 03:42:37 AM »

Haha, yes a lady at children's services (I called asking for help a few weeks ago - opposite probably from most families who fear their involvement) told me the magic words were about no longer being able to keep ppl safe in her presence - in my case, my 2 younger sons.  Well, that's not totally the case - er, that is, we deal w/ it on our own.  Sometimes that means getting either her or them out of the house pronto so no more verbal/emotional abuse can be incurred (from her to them).  She's only 11.  Crazy huh.  It's kind of complicated since she has a history of physically abusing them.  It makes them that much more afraid when they sense she's going to blow up, more so than if that stuff hadn't happened. 
Get this WWIT & Lipstick, the facility sent her home on Lithium and never told me how often she needed her blood levels monitored.  I was taking her to a psychiatrist and to her pediatrician regularly and they knew she was on it, so I figured they'd say something when blood-testing time rolled around.  It was the pharmacist who set me straight.  She'd gone 3x the normal time period between testings when I found out.   :gah:
I don't like that she's on so many meds - but they aren't ones that you can just yank a child off of.  The dosages have to be lowered slowly, adjusted over time.  I don't know if she's really bi-polar, she hasn't officially been diagnosed w/ that, but the O.D.D. gets hard at times.  They've got so many names for things I'm sick of them trying to find which one of their acronyms she fits.  I just want them to toss that aside, take a good study of HER, and treat her for the stuff she's got going on.  Some of the diagnoses she has fit to a T, and there's others that I'm not so sure of b/c there's only 1 or 2 traits of them in her.  As much as I wish she didn't have to be on any meds at all, if there truly is an imbalance of chemicals going on and that's the only way to solve it so she can succeed in life, then I'm fine w/ it.  Sometimes other parents are shocked when I tell them all the meds she's on and they want to know why I allow it.  Well, they haven't been living in this situation trying their darndest for 11 years so they aren't at the end of their ropes!  Anyhoo...
Thanks again for the help and warm wishes.  You all rock!
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True tolerance is loving someone despite actually disagreeing with them.  There is nothing to tolerate if you are not bothered.

Honesty and transparency are virtues to be treasured - don't hide your beliefs in the name of tolerance, be honest about where you stand, just do it with love. smiley
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« Reply #14 on: February 09, 2008, 10:00:39 AM »

RTP, nobody should judge you unless they have walked in your shoes.  The decisions and circumstances that you have faced
are unique and most people have never expereinced anything remotely like them.  Just know that you are doing the very best you can for your family and from what I have seen in the short time I have been a member of this forum you are determined and don't give up!

I admire your spirit and your determination to find a resolution and pray that you are able to get a proper diagnosis and the right meds soon.   yourock 

 Love and prayers to your and your family! Big Hug
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